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Showing posts with label Shaping Our Lives. Show all posts
Showing posts with label Shaping Our Lives. Show all posts

Tuesday, 20 August 2019

Shaping Our Lives Insight: 'No Wheelchair Tax' Campaign #NoWheelchairTax

Shaping Our Lives: A National Network of Service Users and Disabled People bulletin
'No Wheelchair Tax' Campaign #NoWheelchairTax


This bulletin gives an insight into the No Wheelchair Tax campaign, led by Kush Kanodia, alongside Disability Rights UK....

Kush Kanodia, is leading a campaign, alongside Disability Rights UK, to scrap all charges for accessible (Blue Badge) parking at hospitals across England.

This follows the decision by Chelsea and Westminster Hospital NHS Foundation Trust that holders of blue badges would no longer be allowed free parking at Chelsea and Westminster Hospital. Kush is a patient governor for this Foundation and has been trying to persuade the trust for the last year not to introduce parking charges for patients with blue badges.

Kush’s campaign has grown significantly since it’s initiation on 4th July and has had interest from several national newspapers.

Next Steps (direct from the Campaign):

The NHS in Scotland and Wales (2018) have already abolished all car parking charges from their hospitals!
 We are now calling for an “Immediate Judicial Review” and for a Bill to be passed in Parliament to enforce the Equality Act 2010 and protect against any further discrimination against disabled people by the NHS England!
  1. If your local NHS hospital or any NHS hospitals where you receive treatment still charges for disabled parking, then please write and complain to the hospital’s Patient Advice and Liaison Service (PALS).
  2. Send a letter to your local MP (Member of Parliament) supporting our campaign ASAP. If you are not sure who that would be please check the following website: https://www.theyworkforyou.com/
  3. Social Media support: please like, tweet, share and sign up as one of the supporters of our campaign #NoWheelChairTax.
  4. We are approaching all stakeholder from disabled people’s organisations to non-disabled people’s organisation to support our campaign to help create a fairer, more ethical & compassionate Britain.
  5. We are now working with all the political parties to incorporate our campaign as part of their health policy. If you know of anyone who can help to make this possible, we would love to hear from you!
The NHS was founded on the principle of Free at the Point of Delivery and this principle must apply to us all!

Further information:

Timelines & Publications:
4th July 2019 – Our campaign was initiated by Kush Kanodia, a patient Governor at Chelsea Westminster NHS Foundation Trust, at the Public Board meeting of Chelsea Westminster NHS Foundation Trust after they announced their disgraceful decision to start charging for disabled parking at Chelsea Westminster Hospital.

8th July – The formal launch of our campaign was when Kush Kanodia was appointed as the new Ambassador and Leader of the campaign with Disability Rights UK (DR UK).  DR UK is the largest pan-disability charity in the UK that is disabled person led and we manage the All-Party Parliamentary Group for Disability at the UK Parliament. https://www.disabilityrightsuk.org/news/2019/july/meet-kush-kanodia-mba-our-new-ambassador

10th July – Kush Kanodia attended the King's Fund Annual Leadership and Management Summit titled “Compassionate and Inclusive Leadership” and asked Rt Hon Matt Hancock MP, the Secretary of State for Health and Social Care, “What do we do when the people we trust to deliver our healthcare fail to show compassion or inclusive leadership?” Mr Kanodia requested support for the new campaign from Mr Hancock and Simon Stevens, the CEO of NHS England. Kush received no response from either, but he did receive round of applause from the whole audience at the Kings Fund when he highlighted the purpose of the new campaign.

11th July – Disability News Service: Disabled governor’s anger over hospital’s parking charges sparks new campaign. https://www.disabilitynewsservice.com/disabled-governors-anger-over-hospitals-parking-charges-sparks-new-campaign/

15th July – Daily Mail: Number of NHS hospitals charging disabled patients for parking is RISING despite pledge from ministers to end the rip-off. https://www.dailymail.co.uk/news/article-7246813/Number-NHS-hospitals-charging-disabled-patients-parking-RISING.html

15th July – Telegraph: NHS hospitals increasingly charging disabled patients to park, investigation finds as Health Secretary urged to act. https://www.telegraph.co.uk/news/2019/07/14/nhs-hospitals-increasingly-charging-disabled-patients-park-investigation/

15th July – The Times: One in seven hospitals charges for disabled parking. https://www.thetimes.co.uk/article/one-in-seven-hospitals-charges-for-disabled-parking-hfrmdh69p

16th July – BBC London Radio: On Drivetime with Eddie Nestor who interview’s Lucy Aliband a Trustee of Disability Right UK (Please skip to 1:18:53). https://www.bbc.co.uk/sounds/play/p07fbfhd

18th July – Disability News Service: Hancock confronted over hospital parking charges for disabled patients. https://www.disabilitynewsservice.com/hancock-confronted-over-hospital-parking-charges-for-disabled-patients/

25th July – At the Council of Governors’ meeting at Chelsea Westminster NHS Foundation Trust, the Executive of the Trust announced their decision is to now delay the implementation of charging for disabled parking at Chelsea Westminster Hospital. The trust’s plan is to now set up a Working Group going forward. Kush Kanodia has requested to be part of this Working Group going forward due to his expertise on disability and the NHS.

Key Facts:
2019 – Correlation between Disability and Poverty: The Social Metrics Commission’s report confirms that disability is one of the strongest predictors of being in poverty. Nearly half of all those living below the breadline live in a household where someone is disabled.
https://socialmetricscommission.org.uk/wp-content/uploads/2019/07/SMC_measuring-poverty-201908_full-report.pdf

2019 - Disability comes with an extortionate and shocking price tag: One in five disabled people incur extra costs of £583 per month, with almost 25 per cent looking at more than £1000 extra. This price tag is calculated after welfare payments designed to meet those costs have been considered.
https://www.scope.org.uk/campaigns/extra-costs/disability-price-tag/

2019 - Disability Employment Gap: Only 51.5% of disabled people are in work, compared with around 81.7% of non-disabled people. In 2017, the government set a goal to see one million more disabled people in work in the 10 years to 2027. The National Audit Office report in 2019 called “Support disabled people to Work” concludes the Department of Work and Penson’s has recognised that it does not understand enough to frame a full implementation strategy to help more disabled people to work.
https://www.nao.org.uk/report/supporting-disabled-people-to-work/

2019 – Barriers to Work: The Greater London Authority tackling London’s disability employment gap report in 2019 highlights that Disabled Londoners of working age (16-64) are three times less likely to be in work than non-disabled Londoners and identifies the following barriers:
  • Just around half of all disabled Londoners are in work; about 1 in 10 are self-employed.
  • Many disabled Londoners lack the higher-level qualifications necessary to access many of the jobs London creates.
  • While there are many governments sponsored schemes, a third of disabled Londoners were not aware of the schemes, another third was aware but didn’t know how to access them.
https://www.london.gov.uk/about-us/london-assembly/london-assembly-publications/tackling-londons-disability-employment-gap

2017 – Missed Opportunities and Failures: Progress towards real equality for disabled people over the past twenty years is insufficient and 'littered with missed opportunities and failures,’ according to the Chair of the Equality and Human Rights Commission following the publication of ‘Being disabled in Britain: A journey less equal, a comprehensive analysis on how the rights of disabled people are no longer protected in Great Britain.
https://www.equalityhumanrights.com/en/our-work/news/disability-progress-‘littered-missed-opportunities-and-failures

2017 - Systematic violations of disabled people rights: Austerity policies introduced into welfare and social care by the UK government amount to “systematic violations” of the rights of people with disabilities, a UN inquiry has concluded. The UK government is failing to uphold disabled people’s rights across a range of areas from education, work and housing to health, transport and social security, a UN committee on the Rights of Persons with Disabilities inquiry has concluded.
https://www.equallyours.org.uk/uncrpd-disability-report/

2017 - Health and social care spending cuts linked to 120,000 excess deaths in England - The squeeze on public finances since 2010 is linked to nearly 120,000 excess deaths in England, with the over 60s and care home residents bearing the brunt, reveals the first study of its kind, published in the online journal BMJ Open.
https://www.bmj.com/company/newsroom/health-and-social-care-spending-cuts-linked-to-120000-excess-deaths-in-england/

Current - Inaccessible Public Transport - Only 26% of all London Tube stations are accessible (70 out of 270”. Disabled people often have no other choice but must drive to hospital due to our inaccessible public transport. NHS Trusts who charge for disabled parking in London can therefore amount to Direct Discrimination against Disabled People, under the Equality Act 2010, where disability is one of the protected characteristics.
http://www.transportforall.org.uk/public/ug/

Campaign Team:
Kush Kanodia: Leader of the Campaign, Ambassador for Disability Rights UK and Governor for Chelsea Westminster NHS Foundation Trust Hospital: kushuk@gmail.com

Lucy Aliband: Director of Communications of the Campaign and Trustee for Disability Rights UK: lucy.aliband@disabilityrightsuk.org

Kamran Mallick: CEO of Disability Rights UK (DR UK) - DR UK is the largest pan-disability charity in the UK that is disabled person led and manages the All-Party Parliamentary Group for Disability at the UK Parliament.

Key Supporters:
Jonathan Ashworth: Labour’s shadow health and social care secretary, said: “What an absolute disgrace. We need these car parking charges binned. It’s time ministers intervened and sorted this out.” From News Papers.

Lord Chris Homes: a Conservative Peer: “Well done to @KushKanodia for drawing attention to this shocking problem: Number of NHS hospitals charging disabled parking is RISING!” Twitter. https://lordsdigitalchamber.co.uk/twitter/lord-holmes-of-richmond/

Sir John Vince Cable: Lucy Aliband on 29 July 2019 met with the former Leader of the Liberal Democrats, who also now supports our campaign.

Camden Disability Action: “Shocking! We support #KushKanodia campaign and urge other DPOs to join because disabled people are already too stressed by cuts in social care and other benefits to continue to take on this burden.” Twitter https://camdendisabilityaction.org.uk/

Campaign Bootcamp: “Kush calls for an immediate Judicial Review, a Bill passed in Parliament to enforce the #EqualityAct2010 and abolishment of disabled car parking charges in all NHS hospital in England.” Twitter https://campaignbootcamp.org/

Disability Rights UK: https://www.disabilityrightsuk.org/

Global Disability Innovation Hub: https://www.disabilityinnovation.com/

Health Data Research UK: https://www.hdruk.ac.uk/

Camden Disability Action: https://camdendisabilityaction.org.uk/

AbilityNet: https://abilitynet.org.uk/

Kaleidoscope Investments: https://www.kaleidoscopeinvestments.com/

Museum of Happiness: https://www.museumofhappiness.org

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Shaping Our Lives is a leading national user-led organisation that has expertise in the inclusive involvement of people from diverse, seldom heard and marginalised communities, enabling disabled people and service users to meaningfully influence policy creating relevant and effective services. Our work has three core elements:
1. Developing, implementing and facilitating inclusive involvement activities.
2. Conducting user-led, experiential and participatory action research.
3. Representing user-led groups nationally.
Check out our Resource Library for an index of titles where you can download a number of free documents of particular interest to the service user movement.
Remember, if you are a member of Shaping Our Lives  you can post onto the notice board and update your information on your personal page as many times as you want.
Sign up to get our latest e bulletins and newsletters.
 
If you have a resource you would like to share with other user-led organisations and service users please contact us information@shapingourlives.org.uk

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The views expressed in external links do not necessarily reflect the views of Shaping Our Lives.

Thursday, 8 August 2019

Latest News from Shaping Our Lives - Surveys and Consultations

From UK national 'umbrella organisation' for service-user-led-organisations, Shaping Our Lives.

('User-led organisations' differ considerably from many of the much more lucrative charities in both how they operate and their levels of funding.)

Shaping Our Lives latest news
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Welcome to the latest Shaping Our Lives Newsletter this week containing a variety of requests for support via surveys and consultations.


If you have items you would like shared in a future newsletter or stories for our Insight bulletin, please contact us using the email below.

The Rainbow Project – consultation


Birmingham LGBT has received funding from Comic Relief to develop 'The Rainbow Project,' which is a culturally competent group work programme for Lesbian, Bisexual and Transwomen (LBT) survivors of domestic abuse.

The aim of the programme is to offer a safe space for LBT survivors to learn about domestic abuse and healthy relationships, as well as giving them an opportunity to share experiences and gain peer support.

Whilst the focus of the programme is about domestic abuse, they would also like to include a range of topics which can help to promote the health and wellbeing of LBT women.

Being the first of its kind, they are currently going through a consultation process to collate views about how the programme should be developed.

They would like people to support them by completing a very short survey. The results of this will help to shape the programme.

Please complete the survey by Tuesday 13th August 2019
 
The Rainbow Project consultation survey
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Call for Solutions - Ideas and suggestions for a better social security (welfare benefits) system

The Commission on Social Security led by Experts by Experience are very keen to hear the view of Shaping Our Lives members regarding ideas and suggestions for a better social security system.

The original deadline was the 31st July, but they have extended this and responses can now be submitted until the end of August.
Call for Solutions – further information and questions
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National recruitment campaign toolkit – feedback required

As part of the 'Every Day is Different' national recruitment campaign for adult social care, the Department of Health and Social Care (DHSC) developed a toolkit to help employers use the campaign and its materials in their recruitment efforts. This and other materials are available are free to download from: www.everydayisdifferent.com/resources.

Skills for Care would like to get your views on the toolkit and how it could be improved from people who are likely to use it in their recruitment process. This would then feed into phase two of the campaign running from autumn 2019.

If you're interested in providing feedback, please let them know when you'd be available to attend a two hour webinar in August by completing the doodle poll using your full name. The most popular date will then be chosen and people informed of joining instructions.

If you have any queries or would like any further information, please email r&r@skillsforcare.org.uk.
Doodle Poll for National Recruitment Campaign Toolkit webinar

Making NHS Screening Tests more accessible – please help

 
Breakthrough UK is working with Manchester Health and Care Commissioning to find out more about disabled people’s experiences of accessing NHS screening programmes.

Breakthrough is a disabled people’s organisation in Manchester.

Have you ever had?
 
  • Screening in pregnancy
  • Cervical screening (a smear test)
  • Breast screening
  • Bowel cancer screening
  • Eye Screening for people with Diabetes
  • Abdominal aortic aneurysm (AAA) screening

Breakthrough would love to hear from you if you are happy to talk about your experiences of any of these tests – or of being invited to a test. They’re asking:
 
  • Was the screening accessible to you?
  • What were the barriers – they could be things like attitudes, poor access, inaccessible information etc.
  • Why might you choose not to take part in a screening programme?
  • What would make it work better for you?

For more information and to take part, please contact:

Elaine Astley
Email: e.astley@breakthrough-uk.co.uk
Tel: 0161 234 3960
Text Service: 07939 943383

Or you can complete their short anonymous survey via the Survey Monkey link below.
NHS Screening Tests Survey
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Inflammatory Bowel Disease survey 


Crohn’s and Colitis UK, on behalf of IBD UK, have launched a survey to find out what care for IBD should look like. They are aware there are variations in care for IBD, and want to ensure that everyone receives safe, consistent, high-quality, personalised care.

Make your voice heard and complete the new IBD Patient Survey.

The survey will highlight where your IBD team could improve to give you the best possible care.
IBD Patient Survey
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  Disability News Service

Shaping Our Lives has joined up with Disability News Service to bring you the latest news and our archive
The latest news and our archive
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Shaping Our Lives is a leading national user-led organisation that has expertise in the inclusive involvement of people from diverse, seldom heard and marginalised communities, enabling disabled people service users to meaningfully influence policy creating relevant and effective services. Our work has three core elements:
1. Developing, implementing and facilitating inclusive involvement activities.
2. Conducting user-led, experiential and participatory action research.
3. Representing user-led groups nationally
Check out our Resource Library for an index of titles where you can download a number of free documents of particular interest to the service user movement.
Remember, if you are a member of Shaping Our Lives  you can post onto the notice board and update your information on your personal page as many times as you want.
Sign up to get our latest e bulletins and newsletters.

If you have a resource you would like to share with other user-led organisations and service users please contact us information@shapingourlives.org.uk

Follow us on Twitter@solnetwork1
Like us on Facebook: Shaping Our Lives

The views expressed in external links do not necessarily reflect the views of Shaping Our Lives.
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