Latest News from Shaping Our Lives - Surveys and Consultations

From UK national 'umbrella organisation' for service-user-led-organisations, Shaping Our Lives.

('User-led organisations' differ considerably from many of the much more lucrative charities in both how they operate and their levels of funding.)

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Welcome to the latest Shaping Our Lives Newsletter this week containing a variety of requests for support via surveys and consultations. If you have items you would like shared in a future newsletter or stories for our Insight bulletin, please contact us using the email below.

The Rainbow Project – consultation Birmingham LGBT has received funding from Comic Relief to develop 'The Rainbow Project,' which is a culturally competent group work programme for Lesbian, Bisexual and Transwomen (LBT) survivors of domestic abuse. The aim of the programme is to offer a safe space for LBT survivors to learn about domestic abuse and healthy relationships, as well as giving them an opportunity to share experiences and gain peer support. Whilst the focus of the programme is about domestic abuse, they would also like to include a range of topics which can help to promote the health and wellbeing of LBT women. Being the first of its kind, they are currently going through a consultation process to collate views about how the programme should be developed. They would like people to support them by completing a very short survey. The results of this will help to shape the programme. Please complete the survey by Tuesday 13th August 2019   The Rainbow Project consultation survey Share Tweet Forward Call for Solutions - Ideas and suggestions for a better social security (welfare benefits) system The Commission on Social Security led by Experts by Experience are very keen to hear the view of Shaping Our Lives members regarding ideas and suggestions for a better social security system. The original deadline was the 31st July, but they have extended this and responses can now be submitted until the end of August. Call for Solutions – further information and questions Share Tweet Forward National recruitment campaign toolkit – feedback required As part of the 'Every Day is Different' national recruitment campaign for adult social care, the Department of Health and Social Care (DHSC) developed a toolkit to help employers use the campaign and its materials in their recruitment efforts. This and other materials are available are free to download from: www.everydayisdifferent.com/resources. Skills for Care would like to get your views on the toolkit and how it could be improved from people who are likely to use it in their recruitment process. This would then feed into phase two of the campaign running from autumn 2019. If you're interested in providing feedback, please let them know when you'd be available to attend a two hour webinar in August by completing the doodle poll using your full name. The most popular date will then be chosen and people informed of joining instructions. If you have any queries or would like any further information, please email r&r@skillsforcare.org.uk. Doodle Poll for National Recruitment Campaign Toolkit webinar Making NHS Screening Tests more accessible – please help   Breakthrough UK is working with Manchester Health and Care Commissioning to find out more about disabled people’s experiences of accessing NHS screening programmes. Breakthrough is a disabled people’s organisation in Manchester. Have you ever had?   Screening in pregnancy Cervical screening (a smear test) Breast screening Bowel cancer screening Eye Screening for people with Diabetes Abdominal aortic aneurysm (AAA) screening Breakthrough would love to hear from you if you are happy to talk about your experiences of any of these tests – or of being invited to a test. They’re asking:   Was the screening accessible to you? What were the barriers – they could be things like attitudes, poor access, inaccessible information etc. Why might you choose not to take part in a screening programme? What would make it work better for you? For more information and to take part, please contact: Elaine Astley Email: e.astley@breakthrough-uk.co.uk Tel: 0161 234 3960 Text Service: 07939 943383 Or you can complete their short anonymous survey via the Survey Monkey link below. NHS Screening Tests Survey Share Tweet Forward Inflammatory Bowel Disease survey  Crohn’s and Colitis UK, on behalf of IBD UK, have launched a survey to find out what care for IBD should look like. They are aware there are variations in care for IBD, and want to ensure that everyone receives safe, consistent, high-quality, personalised care. Make your voice heard and complete the new IBD Patient Survey. The survey will highlight where your IBD team could improve to give you the best possible care. IBD Patient Survey Share Tweet Forward   Disability News Service Shaping Our Lives has joined up with Disability News Service to bring you the latest news and our archive The latest news and our archive Share Tweet Forward Shaping Our Lives is a leading national user-led organisation that has expertise in the inclusive involvement of people from diverse, seldom heard and marginalised communities, enabling disabled people service users to meaningfully influence policy creating relevant and effective services. Our work has three core elements: 1. Developing, implementing and facilitating inclusive involvement activities. 2. Conducting user-led, experiential and participatory action research. 3. Representing user-led groups nationally Check out our Resource Library for an index of titles where you can download a number of free documents of particular interest to the service user movement. Remember, if you are a member of Shaping Our Lives  you can post onto the notice board and update your information on your personal page as many times as you want. Sign up to get our latest e bulletins and newsletters. If you have a resource you would like to share with other user-led organisations and service users please contact us information@shapingourlives.org.uk Follow us on Twitter@solnetwork1 Like us on Facebook: Shaping Our Lives The views expressed in external links do not necessarily reflect the views of Shaping Our Lives.

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